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Is that so?

9/5/2022

 
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I've been busy recovering, rebooting, reassessing, re-introducing, you name it. I have EBV (Epstein Barre Virus also known as Mono, the kissing sickness, the teenage sleeping disease... ). Apparently I had it at some point previously in life and I was unaware, undiagnosed, who knows. What happened in April was a flare up which, when it happens in adults, can take many forms... migraines, chronic sinus infections, lower back pain. The entire medical establishment refuses to provide a treatment plan and basically identifies chronic EBV as "controversial." A lot of good that did me... I found an enlightened chiropractor who had a plan and I tuned into my friend's doctor in MA, Dr. Qutab for help in finally squelching the flames of the flare up. Holy fucking shit that sucked, it hurt like crazy and lasted two months + 

I just went down the "pissed off and enraged at the medical establishment" rabbit hole for a while. Holy crap... if they can't cut it out or give you a pill the doctors have no idea what they're doing...  Thank goodness there are doctors who are willing to work with you in the unknown. This is the second disease I've had that they had no idea what to do... the first was Disembarkment Syndrome. I am grateful that they knew how to treat melanoma and they had just figured out that removal of lymph nodes at my stage was NOT necessary... OMG that would have been horrible to have the lymph nodes removed in my inner thighs without cause.  I caught it myself, I diagnosed it myself and I'm grateful to my inner truth or guardian angel or whatever told me to advocate for myself. I won't stop doing that anytime soon! With all the amazing medical advances I find it very interesting that the diseases that have impacted me the most remain mysteries.

Ok... I guess I needed to get all that out of my system, who knew!!?? It started with asking my PCP to write me a medical note not to get the COVID vaccine. I was curious what she would say considering she had ZERO help or treatment plan or understanding of my EBV flare up... she would still recommend the vaccine... UN-FUCKING BELIEVABLE... Insane... why recommend a vaccine that would have unknown impact when I'm not in any risk of dying or even serious illness if I did get COVID... GEEZE there I go again! I started writing about an amazing breakthrough I had today. Now I've cleared the air instead of other stuff that's been going on. I guess I need to write more often. Enough said! I'll share the epiphany tomorrow.

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